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Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Lupus and Menopause

We are fortunate to live in a day and age when many of us can speak openly about sexual health and well-being, and it’s no longer considered taboo to discuss menopause.  Once whispered under the breath – and never around men – “the change of life” was something you only discussed with your bestie or…

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Lupus and Opioids

In light of the current opioid crisis, it is important to be aware of the benefits and risks associated with this class of prescription painkillers for those living with lupus. Introduction What are opioids? Dealing with an Opioid Addiction Alternatives to Opioids In Conclusion Introduction Right from the beginning, it is important to note that…

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Lupus and the Cold – Raynaud’s Syndrome

One of the more common overlapping conditions with some of us living with lupus, is Raynauld’s Phenomenon.  This blog describes the condition, what to look for, and how it can be managed. Contents: Introduction Raynaud’s Phenomenon and its Symptoms What causes Raynaud’s Phenomenon? How is Raynaud’s Phenomenon diagnosed? Treating Raynaud’s Phenomenon Preventing or Minimizing Symptoms…

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Lupus and the Flu Shot: What You Need to Know

It is the beginning of the 2019-20 flu season, and here are some important things to think about concerning the flu and flu vaccinations. If you have lupus, you should strongly consider speaking to your doctor about getting a seasonal flu vaccine.  In this blog, we will answer many questions regarding this particular type of vaccination….

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Lupus and Low Disease Activity

While living lupus-free is the ideal goal, what is the optimal goal for an individual living with lupus in the here-and-now? Achieving Lupus Low Disease Activity State (LLDAS) is key to feeling your best with a minimum of symptoms and medications in order to maintain a good quality of life. What does LLDAS look like,…

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Lupus and Mobile Tech – Smartphone Apps and Managing Your Health

According to recent estimates, there are over 300,000 mobile health apps available to the consumer.  What should you consider before downloading an app, and which ones could help you the most with tracking and managing your healthcare? Let’s take a look! Introduction The Latest Mobile Health Apps for Individuals with Lupus The Pros and Cons…

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Lupus and Cannabis: A New Conversation

At Kaleidoscope Fighting Lupus, we rigorously stay up-to-date on the latest lupus treatments and therapy strategies – the uses of cannabis and its derivatives are no exception.  The following is a brief overview that may begin to answer some questions that you may have. Introduction How can cannabis and its derivatives effectively treat lupus symptoms?…

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Dealing With a Lupus Depression: How Do You Cope?

Researchers of a 2017 meta-study published in the journal BMC Psychiatry found that approximately 25% 0f individuals with lupus experience depression. You may be one of those individuals who suffer from this often debilitating condition, especially when trying to come to terms with having lupus. Why does this happen and what can you do to…

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Lupus Fatigue: Causes, Treatment and Managing Expectations

  It is easy to oversimplify fatigue as merely the feeling of being really tired, especially if you don’t have chronic illness or autoimmune disease.  I may say that I feel fatigued after a hard workout at the gym after my muscles have been stretched to their limits and beyond, but I can recover from…

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The Elusive Mr. Sandman – Lupus and the Importance of Sleep

  Hitting the hay, getting forty winks, waiting for a visit from Mr. Sandman – however you may coyly try to catch up or sneak up on sleep, it may still evade you if you are an individual with lupus. Why is the ability to fall into a deep slumber so difficult when you feel…

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Lupus and Nutrition

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Lupus and Gut Health: What is your gut telling you?

A quickly growing amount of research has been devoted to seeing how lupus is affected by gut health, not only in how the disease can be helped by good bacteria, but how it might even be triggered by bad ones! Introduction The Amazing World of Your Internal Ecosystem! Could Gut Bacteria “Cause” Lupus? Keeping Your…

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Lupus and the Biology of Digestion

More than 50% of those with lupus experience some kind of digestive system disorder.  Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…

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Lupus and Maintaining Healthy Weight

  As if you don’t feel bad enough between the fatigue, lupus brain fog and chronic pain, you may also have weight issues to deal with. Whether you have the challenge of keeping the weight on or off, here are some important things to consider! Introduction What causes weight fluctuations in lupus? How can you…

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Summertime Blues

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Lupus Hair Loss and Alopecia Explained

 Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…

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The Lupus Butterfly Rash: Information You Need to Know

  Contents: >What is a malar or butterfly rash? >What can cause a butterfly rash? >How do I know if it’s lupus? >The Differences Between Rosacea and Malar Rashes >Types of Lupus Rashes >Treatment >Prevention Tips >Dr. Nisha Desai Presentation on Lupus and Your Skin >In Conclusion What is a malar or butterfly rash? Derived…

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Lupus and Photosensitivity: When the Sun is Your Enemy

If you have lupus, you might be photosensitive – meaning you have an unusually strong reaction to sunlight.  In fact, about two-thirds of the people with lupus are UV light-sensitive.  Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light. Are you photosensitive?…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!     Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency   This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However,…

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Lupus and Employment –Working Smarter and Not Harder to Create Success

  Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life.   Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t…

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The Dynamics of Relationships – Lupus, Family and Support Systems

  Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication…

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