Coping With Lupus

Lupus and Cannabis: A New Conversation

At Kaleidoscope Fighting Lupus, we rigorously stay up-to-date on the latest lupus treatments and therapy strategies.  In this article, we explore the uses of cannabis and its derivatives.  The following is a brief overview that may begin to answer some questions that you may have. Introduction How can cannabis and its derivatives effectively treat lupus…

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Nutrition and Lupus

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Summertime Blues: Summer and Lupus

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!   Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However, the stress…

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Living with Lupus: Managing Other People’s Feelings When You Are Ill

Sometimes the hardest part of telling others that you have lupus is managing how they deal with your news. Read more about the complex emotions that can arise from a lupus diagnosis. Introduction Fear of the Unknown Vulnerability Trust Jealousy Guilt and Shame In Conclusion   Introduction Having a chronic disease like lupus can be difficult, to say the…

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The 4th of July and Being a Dad with Lupus!

Here are some thoughts from a dad as we begin the summer vacation season and the 4th of July holiday … but these are important for any day of the year … because you are a dad 365 days a year! Introduction Fatherhood and Lupus Society’s Expectations In Conclusion Introduction I am a dad with…

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Lupus and Grief

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…

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There’s An App for THAT! Living With Lupus in the Age of Technology

Note:  For the latest in smart phone apps specific to lupus, check out our updated blog by clicking here Lupus and Mobile Tech – Smartphone Apps and Managing Your Health Contents: EPA’s SunWise UV Index App MANGO Health App Lupus Tracker Pro Image InBox The Lupus Companion Other Helpful Apps     In the age…

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Teens with Lupus: Questions and Answers To Help Teens Deal

Contents: What are the facts? How to Deal with Depression & Anxiety How to Deal with Worry About the Future How to Deal with Social Activities How to Deal with Explaining Lupus to Your Friends How to Deal with Your Parents or Guardian How to Deal with Dating Important Resources   When a teenager or…

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AZATHIOPRINE and Lupus

What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant.  Currently, in addition to its anti-rejection properties, it is also being used more and more to treat autoimmune diseases like systemic lupus, dermatomyositis, vasculitis, rheumatoid arthritis and…

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