Coping With Lupus
About Lupus, Blog, Coping With Lupus, Featured, General Information, Living with Lupus
Summertime Blues: Summer and Lupus
The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…
About Lupus, Blog, Coping With Lupus, Featured
Traveling With Lupus
Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide! Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency This time of year, many people enjoy traveling. Exploring different places, cultures, foods and sights can be inspiring and life-changing. However, the stress…
About Lupus, Blog, Coping With Lupus, Depression, Featured, Gratitude, Life Expectancy, Living with Lupus, Lupus Awareness, Stress
Living with Lupus: Managing Other People’s Feelings When You Are Ill
Sometimes the hardest part of telling others that you have lupus is managing how they deal with your news. Read more about the complex emotions that can arise from a lupus diagnosis. Introduction Fear of the Unknown Vulnerability Trust Jealousy Guilt and Shame In Conclusion Introduction Having a chronic disease like lupus can be difficult, to say the…
Blog, Coping With Lupus, Featured, Living with Lupus, Lupus in Men, Men with Lupus
The 4th of July and Being a Dad with Lupus!
Here are some thoughts from a dad as we begin the summer vacation season and the 4th of July holiday … but these are important for any day of the year … because you are a dad 365 days a year! Introduction Fatherhood and Lupus Society’s Expectations In Conclusion Introduction I am a dad with…
Blog, Coping With Lupus, Featured, General Information, Invisible Illness, Living with Lupus
Lupus and Grief
Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…
Blog, Coping With Lupus, Featured, General Information
There’s An App for THAT! Living With Lupus in the Age of Technology
Note: For the latest in smart phone apps specific to lupus, check out our updated blog by clicking here Lupus and Mobile Tech – Smartphone Apps and Managing Your Health Contents: EPA’s SunWise UV Index App MANGO Health App Lupus Tracker Pro Image InBox The Lupus Companion Other Helpful Apps In the age…
Blog, Coping With Lupus, Depression, Featured, Living with Lupus, Lupus in Children
Teens with Lupus: Questions and Answers To Help Teens Deal
Contents: What are the facts? How to Deal with Depression & Anxiety How to Deal with Worry About the Future How to Deal with Social Activities How to Deal with Explaining Lupus to Your Friends How to Deal with Your Parents or Guardian How to Deal with Dating Important Resources When a teenager or…
About Lupus, Blog, Coping With Lupus, Featured, Living with Lupus, Medications
AZATHIOPRINE and Lupus
What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant. Currently, in addition to its anti-rejection properties, it is also being used more and more to treat autoimmune diseases like systemic lupus, dermatomyositis, vasculitis, rheumatoid arthritis and…
About Lupus, Blog, Coping With Lupus, Featured, Lupus in Men, Medications
DHEA and Lupus
WHAT IS IT? Dehydroepiandrosterone, commonly called DHEA, is a hormone produced by the adrenal glands. DHEA leads to the production of androgen and estrogen, which are sex hormones that play an important role in the reproductive systems of both men and women. Interestingly, studies have shown that people who have SLE, have lower levels of…
Blog, Coping With Lupus, Featured
The Shame Game: Why You Hide Your Lupus from Others
SHAME. The word shame can be described as a painful, social emotion that can be seen as a result of an awareness of inadequacy or guilt. Experiencing shame is, honestly, one of the most miserable and self-loathing emotions this world has to offer. Interestingly, the roots of the word “shame” are believed to be derivative…