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Invisible Illness

Mixed Connective Tissue Disease: MCTD Explained

Contents: What is a connective tissue disease? What is MCTD? What are some signs and symptoms of MCTD? How is it diagnosed? What is the cause of MCTD and can it be prevented? How is mixed connective tissue disease treated? In Conclusion   There are many confusing terms in the world of autoimmune diseases like lupus….

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Good GRIEF!

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…

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Antiphospholipid Syndrome

Scleroderma: What you need to know

Contents: What is Scleroderma? Who develops scleroderma? What causes scleroderma? What are the Signs and Symptoms? How is it diagnosed? How is it treated? What are some complications of scleroderma? Are there alternative treatments or anything that can prevent/manage it? How do I cope with a diagnosis?   What is Scleroderma? Scleroderma (pronounced skler-oh-DUR-muh) is…

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Raynaud’s Disease or Raynaud’s Phenomenon: Symptoms, causes, treatments, and preventing flare-ups

Contents: How do you say it? What is it? What are the symptoms of Raynaud’s? What causes Raynaud’s Phenomenon or Raynaud’s Disease? What are the treatment options for Raynaud’s? Are there any alternative treatments? What can you do to prevent or avoid a Raynaud’s attack? In conclusion How do you say it? Raynaud’s. Just knowing…

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Antiphospholipid Syndrome (Also known as Lupus Anticoagulants or Hughes Syndrome)

Contents: What is antiphospholipid syndrome? Are there any alternate names for APS? What are the signs and symptoms of antiphospholipid syndrome? When should I see a doctor? How are you tested for antiphospholipid syndrome? What causes APS? What is the treatment for APS? Can I do anything to prevent the development of antiphospholipid syndrome? In…

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Sjogren's Syndrome

Sjogren’s Syndrome: What you need to know

Contents: What is Sjögren’s syndrome? Who develops Sjögren’s? How are lupus and Sjögren’s related? What causes Sjögren’s? What are the Signs and Symptoms? How is it diagnosed? How is it treated? What kind of doctor do I need? How do I cope with a diagnosis?   What is Sjögren’s syndrome? Sjögren’s (pronounced SHOW-grin’s) is a…

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Lupus Brain Fog

Lupus Brain Fog: What is it and how do you cope?

Contents: What is lupus brain fog? What are the signs of a brain fog? How can these problems affect daily life? What can I do to cope with a lupus brain fog? The good news! Final words   What is lupus brain fog? Is this image something you can relate to? Have you been forgetful…

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Invisible Illness: “But you look so good.”

Contents: What is an Invisible Illness? Labeling and Stigmas for those with Invisible Illness Understanding Invisible Illness   What is an Invisible Illness? Have you ever seen someone park in a handicap spot and look  perfectly healthy as they step out of the car? You wonder, “They’re not disabled, they can walk just fine! They…

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Coping With Lupus

Coping with Lupus: How Does Lupus Affect Your State of Mind and Body?

Contents: Coping with Lupus Some Main Challenges you May Face Things You Can Do To Help Yourself With hope, there are always possibilities   Coping with Lupus Whether you have been recently diagnosed with lupus or have been living with it for many years, learning to live with, what can be a very debilitating disease,…

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