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Living with Lupus

Lupus and Menopause

We are fortunate to live in a day and age when many of us can speak openly about sexual health and well-being, and it’s no longer considered taboo to discuss menopause.  Once whispered under the breath – and never around men – “the change of life” was something you only discussed with your bestie or…

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Lupus and Mobile Tech – Smartphone Apps and Managing Your Health

According to recent estimates, there are over 300,000 mobile health apps available to the consumer.  What should you consider before downloading an app, and which ones could help you the most with tracking and managing your healthcare? Let’s take a look! Introduction The Latest Mobile Health Apps for Individuals with Lupus The Pros and Cons…

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Lupus and Nutrition

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Lupus and the Biology of Digestion

More than 50% of those with lupus experience some kind of digestive system disorder.  Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…

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Summertime Blues

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Lupus Hair Loss and Alopecia Explained

 Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…

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The Lupus Butterfly Rash: Information You Need to Know

  Contents: >What is a malar or butterfly rash? >What can cause a butterfly rash? >How do I know if it’s lupus? >The Differences Between Rosacea and Malar Rashes >Types of Lupus Rashes >Treatment >Prevention Tips >Dr. Nisha Desai Presentation on Lupus and Your Skin >In Conclusion What is a malar or butterfly rash? Derived…

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Managing Other People’s Feelings When You Are Ill

Having a chronic disease like lupus can be difficult, to say the least.  Coming to grips with the reality that lupus is now a thread in the tapestry of your life is scary and extremely overwhelming.  Once you are told you have lupus, you then have to share the news with the world (or at…

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10 Tips for Parents Living with Chronic Disease

Contents: Parenting with a Chronic Illness 10 Helpful Tips For Parents Living with Chronic Disease Conclusion   Parenting with a Chronic Illness “My top priority with parenting with my chronic illness was to make sure that my children always felt safe and loved. Assuring stability and normality even when I didn’t feel well, made them…

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technology

“Lupus Secrets”: Lupus information you need to know

Contents: Who is Dr. Thomas? What did others think of the webinar and is it worth watching? The “Lupus Secrets” Webinar Video Recording of the “Lupus Secrets” Presentation The 28 Lupus “Secrets” by Dr. Donald Thomas   We were so incredibly impressed by the “Lupus Secrets” that Dr. Donald Thomas shared with Kaleidoscope Fighting Lupus,…

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