To kick off this amazing month of spreading lupus awareness, we would like to announce some very exciting news. Our new and improved Molly’s Fund Fighting Lupus website has now been launched with a new, fresh, and warm look that will welcome hundreds of thousands of visitors each year! The site is located at the same address https://kaleidoscopefightinglupus.org, but has a plethora of new and updated information, our interactive referral network, fantastic lupus blogs and source links, our new Stories of Hope page, and much, much more! We are so excited for you to get in there and take a look around.
Lupus Awareness month kicks off on May 3rd with a press conference at Clear Channel’s headquarters in Tigard, Oregon. Butterflies in the Park, our fun 3K walk for lupus awareness will be held on May 18th at Oaks Park in Portland, Oregon. We sure hope you can join us if you are in the Portland area. If you are not able to physically attend, but would like to be a part of the event, personal fund-raising pages and/or the ability to be a virtual walker (a $5.00 donation) is also available. Click on the image below to sign up to participate either as a volunteer, walker or virtual walker.
All month long, our Dine and Donate program will let you dine at some of your favorite local eateries in the Portland, OR area with a percentage of proceeds benefiting Molly’s Fund. For locations, dates, and times, please go to our Dine and Donate page on our website. We would especially like to thank Cupcake Jones for making Molly’s Fund the beneficiaries of the month during May- Lupus Awareness Month. A percentage of the entire month’s proceeds will generously go to Molly’s Fund! So tell your friends to go get their cupcake on- order them for parties, the office, or just for you!
With 2013 nearly half way through, so many wonderful programs are being planned here at Molly’s Fund to help spread lupus awareness and assist the populations we serve. We would like to thank you for everything you do to inspire us and support our mission.
Many with lupus want to know that they are not alone, that their journey is shared, and that the challenges, fears, and successes that each individual’s experiences might give hope to another. Click here to share your story with us and our lupus community. The story must be 75 words or less and you may attach a jpeg photo of you as well! We look forward to hearing from you and having you be a part of our online family of lupus warriors. Read Jennifer’s (image above) story here. You can also find our Stories of Hope on Pinterest!
Everybody needs a helping hand now and then. Whether it’s a phone call to our office, a hug when we see each other, a link to resources, we are here for you. Join us for support group meetings, either virtually, or locally here in Portland, Oregon. Our Portland Support Groups meet on the second Saturday of every month. We have two groups that meet simultaneously: One for Lupus Patients and one for Family/Friends/Caregivers of those suffering with lupus.
It is our mission at Molly’s Fund Fighting Lupus to educate the public about lupus, partner with the medical community to push for earlier, life-saving diagnosis, and to spur governments and foundations to fund research toward a cure.
Lupus is an autoimmune disease affecting approximately 1.5 million Americans and 5 million worldwide. 90% of those affected are women with 2/3 of those of minority descent. While lupus is not well known or understood, it is far more common than better known diseases such as cystic fibrosis, leukemia, muscular dystrophy, and multiple sclerosis. Without early diagnosis and treatment, lupus can be severely debilitating or deadly.
Visit MollysFund.org for more information about lupus and what we are doing to fight this disease.
We are now accepting applications in the process of final team selection for Serving Up Stlye 2013. If you or someone you know would be interested in being a part of the largest design event in the Northwest, please contact the office at503-775-3497 to schedule your appointment.
We would like to welcome the two newest members of the Molly’s Fund Fighting Lupus Board of Directors. These amazing individuals are dedicated to our mission, raising lupus awareness, moving the organization forward, and making a difference for those suffering with this debilitating disease.
Vice President Private Client Reserve, US Bank
and Brian Leong
Employee Benefits Specialist, Montgomery& Graham, Inc