But Why? Lupus

By Alexis C. Rizzuto But Why? Lupus explores a young person’s experience with the diagnosis of systemic lupus erythematosus (SLE), more specifically, lupus nephritis, SLE. This thoughtful book explores the stages from diagnosis through remission by allowing the reader to enter the lives of one family.

You can purchase this book on Amazon, or email [email protected] for more information.

Lupus: My Constant Companion and Greatest Inspiration

New Author Sheds Positive Light on Living with Lupus

In the book: Lupus: My Constant Companion and Greatest Inspiration, a woman shares her journey of living with Lupus. Through gaining an awareness of the disease as well as the triggers at a physical, emotional and spiritual level, she was able to realize that almost every symptom, side effect and medication could be managed (and counteracted in some cases), which enabled her to regain much of the energetic life she once had. She provides concrete tools to support self-discovery for the reader to apply to their own life to achieve a sense of balance and become an active decision-maker towards their own well-being.

The Lupus Encyclopedia, A Comprehensive Guide for Patients and Families

By: Dr. Donald E. Thomas, Jr., M.D., FACT, FACR The Lupus Encyclopedia is an authoritative compendium that provides detailed explanations of every body system potentially affected by the disease, along with practical advice about coping. People with lupus, their loved ones, caregivers, and medical professionals—all will find here an invaluable resource. Illustrated with photographs, diagrams, and tables, The Lupus Encyclopedia explains symptoms, diagnostic methods, medications and their potential side effects, and when to seek medical attention. Dr. Donald Thomas provides information for women who wish to become pregnant and advises readers about working with a disability, complementary and alternative medicine, infections, cancer, and a host of other topics. Print out this flyer for a special 30% discount/order form: The Lupus Encyclopedia

What Does Super Jonny do When mom Gets Sick?

Jonny is a little superhero with a big problem.

His Mom is sick.  How can he help? Join Jonny and Bear as they go to the hospital to investigate.

LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny’s secret weapon. BECOME EMPOWERED to offer practical help to a sick person.

>Visit www.SickMom.org to learn more and purchase the book

Diary of a MAD Lupus Patient

Diagnosed during her high school years, the author decided to keep a personal diary of her confusion, fear, and challenges of being diagnosed with Lupus. Lupus, also known as Systemic Lupus Erythematosus (SLE) is a disease that can affect many different body systems, including the joints, skin, kidneys, blood cells, heart, and lungs. Lupus is more common in women than in men. Research continues to be done on finding a cure for this life-threatening illness. This diary records thoughts and feelings for being diagnosed, to understanding and accepting the reality of living life with Lupus.

Lupus Q & A

A perennial bestseller, Lupus Q&A is the go-to guide for sufferers of a chronic autoimmune disease that affects more than 1.4 million people in the United States alone. Characterized by achy joints and skin rashes, lupus often mimics other diseases, making it tricky to diagnose and treat. In this completely revised and updated edition, Dr. Robert Lahita and Dr. Robert Phillips—leading experts on lupus—discuss topics in a clear, concise, and easy-to-follow Q&A format.

If You Have to Wear and Ugly Dress, Learn to Accessorize

“Lupus and scleroderma are our shadows but they do not define us. We may have to wear the ugly dresses of chronic illness but we don’t have to be the ugly dresses.” — Linda and Karen

If you are experiencing a long-term illness or disability, this book is for you — as well as your family and friends. The authors share a collection of deeply personal stories and poetry to describe their journey from illness to health, well-being, and fruitful living. Their creative life management strategies provide a road map to help you.

The LUPUS Diet Plan

“Whether you are newly diagnosed with lupus or you have had the disease for decades, The Lupus Diet Plan is a must-have addition to your cooking and lifestyle book collection. The Lupus Diet Plan provides an excellent narrative that outlines easy ways to establish healthy eating habits and lifestyle choices while explaining the science behind the food.”
―Kelli Roseta, 26-year systemic lupus erythematosus survivor; Client Services Coordinator Kaleidoscope Fighting Lupus.