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Stories of Hope

Our stories, our struggles, and our triumphs in the fight against lupus. If you have shared your story, visit our Facebook page every Tuesday to see if your story was shared with our online community! The comments and support for each story are so inspiring.

Naomi

Naomi

My lupus diagnosis finally confirmed the identity of an illness that has been a companion on this journey since 1960. The first time I had an inkling of lupus was when I was pregnant with my last son and failed the STD screening test for syphilis. Three years ago an enormous ANA clued my doctor to send me to a rheumatologist who tugged my hair and said, "You don't have lupus." Because of a second opinion at 64 I now have a diagnosis of lupus. Kaleidoscope Fighting Lupus has filled in the blanks for me. I love you all! Live in hope and never give up!

Cathy

Cathy

My name is Cathy and my lupus symptoms came on fast and furious. I am grateful that I was diagnosed quickly and started my treatment plan in 2010. Even though I have struggles I have learned to be patient, understanding, and empathetic not only with others but with myself also. Kaleidoscope Fighting Lupus has taught me to be better and not bitter. Every day I choose to accept my lupus with grace. I love the life I live.

Lisa

Lisa

I was finally diagnosed with lupus six years ago. I say finally because it was a long eight-ish years of being sick! In addition to lupus, I have fibromyalgia. I am thankful for this lupus journey because it has brought so many people into my life that I would have never met otherwise. I try to raise awareness of this silent disease that not many understand. On the outside, most of us look happy and healthy, but on the inside we are fighting for our lives. I may have lupus, but lupus does not have me.

Jesse

Jesse

When I first got sick I thought I would soon get better. I didn't grasp that my lupus was something I would have to live with forever. I've always said I was born happy. I'm lucky to have a positive attitude and the ability to make the best of any situation. Through not walking, trouble breathing, constant pain, and memory issues I have kept my positive attitude! I'm lucky to be on this Earth and breathing every day. Thank you Kaleidoscope Fighting Lupus for the continued support.

Orlando

Orlando

I'm a veteran of the Iraq war and a retired police officer. Never did I imagine at age 45 being diagnosed. It's been two years now and this has motivated me to raise my two boys fervently and without skipping a beat. I've been through much, but nothing like this disease. I'm a fighter by trade and this I will also defeat. Stay positive and live life to the fullest.

Donna

Donna

27 years ago, while attending a master's class on social work, I was diagnosed with SLE - lupus. I graduated and worked in a hospital until retirement. Two years following my diagnosis, I began volunteering in the lupus community helping people cope and accept lupus fully into their lives. It was my passion. Last year, I proudly published a book, "When Lupus Throws You For A Loop." Kaleidoscope Fighting Lupus and Kelli Rosetta have been a treasure teaching us we are valued and not alone.

Heather

Heather

I was diagnosed with lupus in 2006, one month after turning 18. I was a senior in high school. I also have fibromyalgia, Raynaud's, P.O.T.S., and IC. Lupus has been a very cruel disease and hasn't taken a day off since I was first diagnosed. Despite the challenges lupus has presented, I am proud to say I have earned two college degrees, got married, and gave birth to the most beautiful baby girl, who is now two. I will never give up fighting because I always want to be here for my daughter.

Kathleen

Kathleen

It is great to have a community that supports and empathizes with the day to day challenges of living with lupus or any chronic disease. I have antiphospholipid antibody syndrome - also called lupus anticoagulation/Hughes syndrome. I was not correctly diagnosed until 2005. By then, the blood clots, embolisms and scaring to right atrium had compromised my heart, lungs, oxygen and blood. I carried oxygen 6 years 24/7. I coach and present to groups about living a quality life with lupus: Health to Wealth.

Amy

Amy

Hello my name is Amy. I was diagnosed with lupus in 2003 while I was pregnant with my daughter. I was in so much pain and had lost 80% of my hair and only weighed 110 pounds. It wasn't until my dad moved me home that I got the help I needed to get back on my feet. I was put into the hospital and was told that I had maybe two weeks to live. Pneumonia had taken over. They got me back on my feet. I have had my lungs, heart, and kidneys attacked. I fight every day to watch my daughter grow.

Dakota

Dakota

My name is Dakota. I am 22 and I was diagnosed with SLE when I was 16. When I was 20 I stopped responding well to Plaquenil and I have been trying different treatments ever since. I am in my first year of law school and it has been a nightmare but I refuse to let lupus control my life. I go to class every day in pain, tired, and I have to think twice as hard as my peers to be successful. I even lost most of my hair this year. But this is my dream and I'm not going to let lupus hold me back.

Rhianna

Rhianna

I was diagnosed with lupus at the age of 15. I am now 29 years old , married, and have two beautiful healthy girls. There are days where I don't know how I'm going to get through the pain while taking care of my girls, but somehow I find the strength to do it. Some days are so bad all I want to do is cry and ask God why me?! Why do I have to live with constant and unbearable pain? We very tough and strong people. That is why we were the ones chosen to live with lupus. We are fighters!

 

Betty

Betty

I was diagnosed with RA followed by Fibromyalgia with a main diagnosis of lupus. With numerous hospital stays over past 7 years. Including congestive heart failure which has lead to 2 heart surgeries as well as collapsed lung. We all know the other symptoms such as fatigued, constant pain, lack of movement, diff levels of anxiety and depression. What i would like to leave with you is not the extent of my pain but the determination and desire to live! To take back my life. Be Unstoppable!