Stories of Hope

Our stories, our struggles, and our triumphs in the fight against lupus. If you have shared your story, visit our Facebook page every Tuesday to see if your story was shared with our online community! The comments and support for each story are so inspiring.

Rosalie

Rosalie

I was diagnosed with SLE in 2015 at the age of 39. It’s tough with all the doctor appointments , hospital stays and more bad days than good. I have a wonderful husband who has stuck through it all as I lost friends. I have learned to live my life to the fullest the best I can and stay positive to make people wonder how I do it. The advice I would give is take one day at a time and listen to your body because you know your self than everyone else. I may have Lupus but Lupus doesn’t have me.

Tina

Tina

I was 18 and giving birth at 28 weeks to my beautiful baby girl when I was diagnosed with SLE. I pushed and went blind and went in for an emergency c-section. After 41 spinal taps, a stroke from antiphosfolipid syndrome, VP shunt, LP shunt, and nerve sheeth surgery for psuedotumor cerebri, open heart surgery for mitral valve replacement due to heart failure, Lupus Nephritis class 5, and neuropsychiatric SLE I am still smiling and still fighting. My daughter is 20 yrs old now. And I can see!

Joanna

Joanna

My name is Joanna and I am 53 years old. I was diagnosed at the age of 26 years old with lupus. My doctor had no clue what to do! She sent me down the hall to the health center thinking they might have a pamphlet on lupus. It’s been a long road but now have a wonderful team of doctors. Here I am with my three miracles. Lupus effected me differently with each pregnancy. Nowadays, I am extremely anemic, mild kidney failure, and yucky pain that greets me in the mornings. Keep punching it!

Gellyn

Gellyn

I got diagnosed with SLE on 2016. I was going down from a hiking/camping trip with my sister when the butterfly rashes came out. I am coping well in my daily life but sometimes it's hard for me to tell people about Joint pains or Raynaud's as I'm seen as "healthy and fit". I saw a friend's post about Kaleidoscope Fighting Lupus, clicked on it and I found the page informative and it makes me feel that I am not alone in dealing with Lupus and there are people that understand and can relate to me.

Carla

Carla

YOU ARE NOT ALONE on your journey! THAT is how Kaleidoscope Fighting Lupus helped me feel and that’s also why I share my story! It’s a scary feeling to be diagnosed with a disease we know nothing about! Talking to others about how you’re feeling, what you go through, and what has helped you become a Lupus Warrior is the best therapy! After 5 yrs of living with daily ailments, I have found THE BEST natural supplements that focus on gut health! This has changed my quality of life, living with lupus!

Jaidee

Jaidee

I am 44 years old and lupus hits me 22 years ago. I am a nurse by profession. My job tells me to care for the sick, which meant when I became a patient I had to nurse myself. Perhaps, I considered myself a warrior. Battling lupus for this long made me a tougher person than I could ever imagine. Maybe my life has been wasted because of lupus but then I realized that everything happens for a reason. Lupus to me is a gift for it taught

Eya

Eya

I was diagnosed with SLE in November of 2017. I was in my second year of law school. I did not know what to do. I felt my world crashing as if my dreams were stolen. I know things will never be the same again for me, my friend and family. I’m keeping the fight, whatever it takes. Kaleidoscope Fighting Lupus helped me in a way that I don’t feel alone in this journey. That there are people out there who are also with me – fighting in this battle called life.

Lori

Lori

I was diagnosed with lupus in 1999 at the age of 39 . I am 59 yrs old now . I have had many ups and down with lupus . I am also a retired nurse and spreading awareness and education on lupus . In my nursing career I worked with patients who had chronic illnesses and assisted them in getting the care they needed. Kaleidoscope has helped give me the knowledge and help educate and spread awareness of lupus and chronic illness.

Andrea

Andrea

I was diagnosed last July after feeling sick for quite a number of years. I had to stop working in order to figure out what my body was going through. I had to have a hysterectomy at 36, which pushed me to have early menopause and osteoporosis. But as us lupus warriors fight...I didn't want this disease to get the best of me. I found myself having to start from scratch after 15 years in the medical field. I'm now also a notary public and on my way back up!

Lorenz

Lorenz

The year 2018 hit me with my greatest battle with lupus. More than the pains my body had already endured, depression drowned me, swallowed me to its deepest ground. My mind was a full bottle, crowded and perilous. But this experience is teaching me to observe life through an empty bottle; that I must learn to pour out everything first, so that I can clearly see the bigger reason for this life episode. I surrender to the substance that already fills me to allow new, clear water to flow.

Jacqueline

Jacqueline

Hey my name is Jacqueline. I was diagnosed with lupus 2010 and it hit hard May 15, 2018. My joint pains are real bad and my shoulders feel so heavy with pain that I can barely lift my hand. I'm recently in a wheelchair because I can't stand up on my own. I do have physical therapy coming to my home. I am taking my medicine, Plaquenil. I lost my hair due to lupus, Still, I will not let lupus defeat me!

Nicole

Nicole

I went from a healthy active 22-year-old to a crippled one. I went through months of debilitating joint pain, weight loss, rashes, pleurisy, purple fingers, pneumonia, & fevers that all led to a diagnosis of Lupus. While I can sit here and write about how much it sucks, and how much it’s negatively impacted my life, I choose to tell you how it’s been a blessing. It’s shown me what’s important in life, who’s important in this life and how to appreciate the little things. It’s taught me that I’m strong!