Blog

Where Should You Live if You Have Lupus?

One of the most often asked questions that comes our way at Kaleidoscope Fighting Lupus is, “Where is the best place to live with lupus?”  Putting it mildly, that question is about as complicated as the disease itself.  Now, before I lose you – let me delve into why.  The heterogeneity of the disease is…

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Lupus and CellCept®

WHAT IS IT? CellCept® or mycophenolate mofetil, is a medication that was first prescribed to treat people who have had an organ transplant.  Over the last 15 years, it has been increasingly used more to treat immune disorders, like systemic lupus erythematosus, lupus nephritis, rheumatoid arthritis, scleroderma and other lupus overlap diseases.    This blog…

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Teens with Lupus: Questions and Answers To Help Teens Deal.

Contents: What are the facts? How to Deal with Depression & Anxiety How to Deal with Worry About the Future How to Deal with Social Activities How to Deal with Explaining Lupus to Your Friends How to Deal with Your Parents or Guardian How to Deal with Dating Important Resources   When a teenager or…

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Self-Advocacy

Your Life. Your Right. “You are lucky…you could have died.”   Those were the ominous words that came out of my rheumatologists mouth after she discovered the reason I was ill was due to another doctor not administering steroids during a recent surgery.  To say I was baffled, was an understatement.  The questions came on…

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What Problems Are Running Through YOUR Veins? Blood Disorders and Lupus

Contents: Blood Disorders           Anemia           Thrombosis           Vasculitis Other Issues Conclusion   Lupus, on many levels, can make one’s blood boil.  That may be a little dramatic, but not far off from how one feels when there are problems with the concoction of blood cells…

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Adapting to the Pain

Does the Pain EVER go Away? Note:  For a detailed summary of the types and sources of pain with lupus, check out our blog, Pain, Pain Go Away: The Chronic Pain of Lupus. For someone who is newly diagnosed with lupus, one of the first things he or she will anxiously ask is… “Will my…

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Lupus and the Gastrointestinal System

Contents: The Gastrointestinal System Esophagus Irritation Digestive Woes Crohn’s & Colitis Peptic Ulcers Pancreatitis Peritonitis and Ascites Liver Complications Conclusion   The Gastrointestinal System We all know that lupus can devour almost any part of the body – which means, sadly, the gastrointestinal system is not exempt from its calculating clutch. People with lupus often…

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Antiphospholipid Syndrome

Scleroderma: What you need to know

Contents: What is Scleroderma? Who develops scleroderma? What causes scleroderma? What are the Signs and Symptoms? How is it diagnosed? How is it treated? What are some complications of scleroderma? Are there alternative treatments or anything that can prevent/manage it? How do I cope with a diagnosis?   What is Scleroderma? Scleroderma (pronounced skler-oh-DUR-muh) is…

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Remission Guilt

Is it Okay to be well? When I was in the hospital with lupus, I made friends with all the other teenage “regulars” who, like me, were frequent admits of the eighth floor.   All of my new friends were dealing with life-threatening, chronic illnesses.  My  “chronic kids crew” and I bonded quickly over medications, physical…

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AZATHIOPRINE and Lupus

What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant.  Currently, in addition to its anti-rejection properties, it is also being used more and more to treat autoimmune diseases like systemic lupus, dermatomyositis, vasculitis, rheumatoid arthritis and…

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