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About Lupus

Lupus and Low Disease Activity

While living lupus-free is the ideal goal, what is the optimal goal for an individual living with lupus in the here-and-now? Achieving Lupus Low Disease Activity State (LLDAS) is key to feeling your best with a minimum of symptoms and medications in order to maintain a good quality of life. What does LLDAS look like,…

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Lupus and Nutrition

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Lupus and the Biology of Digestion

More than 50% of those with lupus experience some kind of digestive system disorder.  Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…

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Summertime Blues

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!     Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency   This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However,…

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Symptoms of Lupus in Men

  Symptoms of Lupus in Men Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE…

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Managing Other People’s Feelings When You Are Ill

Having a chronic disease like lupus can be difficult, to say the least.  Coming to grips with the reality that lupus is now a thread in the tapestry of your life is scary and extremely overwhelming.  Once you are told you have lupus, you then have to share the news with the world (or at…

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Stroke and Your Most Valuable Asset: Your Brain

  Contents What is stroke? What are the risk factors for stroke in individuals with SLE? How does stroke affect the brain? Decreasing the Risk of Stroke In Conclusion Constantly processing the input and output of data, your brain is your most precious – and potentially vulnerable – asset. Responsible for storing family vacation memories,…

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Lupus and Nutrition

The Lupus and Diet Dilemma

Contents: The Lupus and Diet Dilemma: What should we eat? What should we avoid? Tricks are for kids Lupus and Diet: What are the recommendations for what we should be eating? Ok, now for the bad news…what should we be avoiding? Tips and Links!   The Lupus and Diet Dilemma: What should we eat? What…

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10 Tips for Parents Living with Chronic Disease

Contents: Parenting with a Chronic Illness 10 Helpful Tips For Parents Living with Chronic Disease Conclusion   Parenting with a Chronic Illness “My top priority with parenting with my chronic illness was to make sure that my children always felt safe and loved. Assuring stability and normality even when I didn’t feel well, made them…

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