Living with Lupus

Contents: How to Get Your Doctor to Take You Seriously… In a Seriously Short Office Visit Write Out Your Questions In Advance Speak Up! Check Your Fear At the Door Conclusion   How to Get Your Doctor to Take You Seriously… In a Seriously Short Office Visit Physicians now, more than ever, are in a…

Contents: Introduction Steps to Creating Your New Normal           Start your day the right way… with an attitude of gratitude           Praise yourself for who you are not what you do           Let go of the past           Welcome new experiences    …

Lupus is complex!  Epigenetics is  a new frontier in lupus research and therapy that combines what we know about genetics with all of the environmental and lifestyle factors that can affect our health.  It may be the key to not only unlocking some of the mysteries of the disease, but also its cure! Introduction An…

Is It Lupus Chemo? INTRODUCTION Before diving into this blog topic, I thought I knew the exact waters I was entering.  I mean, pretty clear in my mind, Rituxan is “lupus chemo” right?  Many of you (like me), may be shocked to find out that although Rituxan is used to treat cancer, it is not classified…

Contents: Complementary Medicine Complementary and Alternative Supplements and Treatments for Lupus Alternative Lupus Therapies/Treatments Complementary/Alternative Lupus Treatment: Precautions   Complementary Medicine In our blog, Lupus Treatment Options: Lupus Medications, we covered many of the most common pharmaceutical treatments for lupus.  We also recently posted a blog on the first FDA approved lupus drug in 50…

You just scheduled your first appointment with a rheumatologist – now what?  Whether you think you have lupus or not, you are probably feeling scared, confused, and tired of filling out repetitive forms … and maybe a bit alone.   Your body, your entire world may seem out of control.  Yet, you can take back…

Osteoporosis is probably the most well-known medical condition related to bone-loss.  However for those living with lupus, avascular necrosis (AVN) is also a concern – affecting approximately 10% of those living with SLE.  What is AV?  What symptoms should you look for, and how can you prevent or treat damage to your bones?  Read on…

Up to one-third of individuals with lupus will develop some form of eye complications. Learning about the signs, symptoms and treatment options can help maintain the health of your delicate eyes. Introduction A Brief Anatomy of the Eye What eye diseases may affect an individual with lupus? What causes eye disease in individuals with lupus?…

The access, time, and attention you have with your rheumatologist are vital to your health and treatment planning.  However, with more rheumatologists retiring than going into the field, that access may become more challenging.  Read on to find out about the shortage of rheumatologists, and how this might affect you.   Introduction:  How big is…

Lupus can affect the nervous system in a number of ways, from seizures and nerve pain to memory loss and brain fog. Learn more about the nervous system, what symptoms to watch out for and what you can do about them in this KFL article! Introduction: The Two-minute Overview The Nervous System: Another Overview Lupus…