Living with Lupus

Lupus and Menopause

We are fortunate to live in a day and age when many of us can speak openly about sexual health and well-being, and it’s no longer considered taboo to discuss menopause.  Once whispered under the breath – and never around men – “the change of life” was something you only discussed with your bestie or…

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Lupus and Mobile Tech – Smartphone Apps and Managing Your Health

According to recent estimates, there are over 300,000 mobile health apps available to the consumer.  What should you consider before downloading an app, and which ones could help you the most with tracking and managing your healthcare? Let’s take a look! Introduction The Latest Mobile Health Apps for Individuals with Lupus The Pros and Cons…

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Nutrition and Lupus

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Lupus and the Biology of Digestion

More than 50% of those with lupus experience some kind of digestive system disorder.  Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…

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Summertime Blues: Summer and Lupus

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Lupus Hair Loss and Alopecia Explained

Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…

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The Lupus Butterfly Rash: Information You Need to Know

At least half of individuals with lupus have the malar – or butterfly – rash. Read on to learn more about this common, characteristic condition for those living with lupus. Introduction Causes of the Malar Rash Diagnosing Malar Rash and Lupus Treating and Preventing Malar rash Mental Health and Malar Rash Dr. Nisha Desai:  Lupus…

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Living with Lupus: Managing Other People’s Feelings When You Are Ill

Sometimes the hardest part of telling others that you have lupus is managing how they deal with your news. Read more about the complex emotions that can arise from a lupus diagnosis. Introduction Fear of the Unknown Vulnerability Trust Jealousy Guilt and Shame In Conclusion   Introduction Having a chronic disease like lupus can be difficult, to say the…

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The 4th of July and Being a Dad with Lupus!

Here are some thoughts from a dad as we begin the summer vacation season and the 4th of July holiday … but these are important for any day of the year … because you are a dad 365 days a year! Introduction Fatherhood and Lupus Society’s Expectations In Conclusion Introduction I am a dad with…

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Lupus and Grief

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…

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