Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the                               never-ending quest for a cure.

Lupus Retinopathy

Lupus retinopathy is the most common vision concern for those living with SLE, and is often one of the first symptoms for the newly diagnosed.  Yet, serious problems with eyesight are relatively rare, and there are many ways to avoid the damage that lupus can cause.  So, read on to learn more about how lupus…

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H.P. ACTHAR® GEL and Lupus

 WHAT IS LUPUS? Lupus is widespread and chronic autoimmune disease that, for some reason, causes the immune system to attack the body’s own tissue and organs, including the joints, kidneys, heart, lungs, brain, blood or skin.  Lupus is one of America’s least recognized major diseases, despite the fact that hundreds of thousands of Americans suffer…

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Lupus Nephritis

Lupus Nephritis

Contents: Introduction What are the kidneys and what do they do? What are the symptoms of lupus nephritis and how do I recognize it? How does lupus nephritis get diagnosed? Once diagnosed, how is lupus nephritis treated? Can Lifestyle Changes Help Those With Lupus Nephritis? How Research is Providing Hope In Summary, by Dr. Donald…

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Lupus Defintition

Doctors Who Treat Lupus

Contents: Introduction Types of Doctors That Treat Lupus:      Dermatologist      Cardiologist      Clinical Immunologist      Endocrinologist      Family Doctor      Gastroenterologist      Hematologist      Nephrologist      Neurologist      Perinatologist      Psychologist      Pulmonologist      Rheumatologist      Social Worker In Conclusion…

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Lupus and Grief

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…

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Lupus and Stem Cell Therapy

INTRODUCTION Recently, there has been an influx of research about stem cell therapies being used as a potential treatment for SLE and other lupus overlap diseases.  At Kaleidoscope Fighting Lupus, we have received several inquiries regarding this new therapy, and deemed it responsible to clarify (due to its experimental and somewhat controversial nature) what stem…

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Plaquenil

Plaquenil: What You Need to Know

Contents: What is Plaquenil? Other than Plaquenil, what are the other antimalarial drugs? Why are antimalarial drugs used to treat lupus? How do antimalarial drugs work to control lupus symptoms? What should I keep in mind when taking antimalarial drugs?  How to use Plaquenil What are the possible side effects of antimalarial drugs? Can I…

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Your ANA: Facts and Fiction

Two Scenarios SCENARIO ONE: Sarah’s heart is racing as she sits in her doctor’s office awaiting her test results.   The visible facial rash and joint pain that appeared after her baby was born have been extremely challenging to live with.  The answers to what seem like months of waiting, months of referrals, and months of…

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Low-Dose Naltrexone and Lupus

The Use of Low-Dose Naltrexone for Lupus and Other Overlap Conditions WHAT IS LDN? Low-dose naltrexone or LDN is a medication that is getting more attention because of preliminary research showing promise for use with diseases like multiple sclerosis, some cancers, HIV/AIDS and other chronic pain conditions.  Over the last several months, we, at Kaleidoscope…

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There’s An App for THAT! Living With Lupus in the Age of Technology

Note:  For the latest in smart phone apps specific to lupus, check out our updated blog by clicking here Lupus and Mobile Tech – Smartphone Apps and Managing Your Health Contents: EPA’s SunWise UV Index App MANGO Health App Lupus Tracker Pro Image InBox The Lupus Companion Other Helpful Apps     In the age…

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Lupus and Hormones

Never underestimate the power of hormones. These potent chemical messengers help regulate almost every function of the human body … including the autoimmunity.  Find out more about how they may influence lupus, and how they may lead to future treatments Introduction to Lupus and Hormones What role do hormones play in autoimmune disease and lupus?…

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CellCept® and Lupus

WHAT IS IT? CellCept® or mycophenolate mofetil, is a medication that was first prescribed to treat people who have had an organ transplant.  Over the last 15 years, it has been increasingly used more to treat immune disorders, like systemic lupus erythematosus, lupus nephritis, rheumatoid arthritis, scleroderma and other lupus overlap diseases.    This blog…

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Teens with Lupus: Questions and Answers To Help Teens Deal

Contents: What are the facts? How to Deal with Depression & Anxiety How to Deal with Worry About the Future How to Deal with Social Activities How to Deal with Explaining Lupus to Your Friends How to Deal with Your Parents or Guardian How to Deal with Dating Important Resources   When a teenager or…

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Lupus and Blood Disorders

It is estimated that 85% of lupus patients will experience some form of unhealthy blood condition. In this article, we will take a closer at the blood disorder risks, symptoms and treatments for individuals living with lupus.   Introduction What is blood? What causes a blood disorder? Diagnosing Blood Disorders Common Blood Disorders in Lupus…

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AZATHIOPRINE and Lupus

What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant.  Currently, in addition to its anti-rejection properties, it is also being used more and more to treat autoimmune diseases like systemic lupus, dermatomyositis, vasculitis, rheumatoid arthritis and…

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DHEA and Lupus

WHAT IS IT? Dehydroepiandrosterone, commonly called DHEA, is a hormone produced by the adrenal glands.  DHEA leads to the production of androgen and estrogen, which are sex hormones that play an important role in the reproductive systems of both men and women.   Interestingly, studies have shown that people who have SLE, have lower levels of…

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The Shame Game: Why You Hide Your Lupus from Others

SHAME. The word shame can be described as a painful, social emotion that can be seen as a result of an awareness of inadequacy or guilt.  Experiencing shame is, honestly, one of the most miserable and self-loathing emotions this world has to offer.   Interestingly, the roots of the word “shame” are believed to be derivative…

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Lupus and the Endocrine System

The endocrine system doesn’t get the respect it deserves – after all, it influences almost every cell, organ and function of the body.  It is also intimately connected to your immune system and can be heavily influenced not only by your lupus, but also by the medications you take.  How?  Read on to find out!…

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What-is-Lupus

Prednisone: Pain Relief vs. Weight Gain?

Contents: What is prednisone and why is it prescribed? What is the benefit? Weight gain and other side effects of this medication… what are the risks? 10 Things you should know/do before taking prednisone How should it be used? In conclusion: The benefits and the risks weighed   What is prednisone and why is it prescribed? What…

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100 Years of Lupus

INTRODUCTION If you were to question people on the street about the discovery of lupus, if they knew what it was in the first place, they would probably assume that it was a modern day disease.  That assumption makes sense as to why so many people still don’t know what it is and what it…

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STOP! LOOK! AND LISTEN! How to Get Your Doctor to Take You Seriously… In a Seriously Short Office Visit

Contents: How to Get Your Doctor to Take You Seriously… In a Seriously Short Office Visit Write Out Your Questions In Advance Speak Up! Check Your Fear At the Door Conclusion   How to Get Your Doctor to Take You Seriously… In a Seriously Short Office Visit Physicians now, more than ever, are in a…

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