Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Lupus and Self-care: A Day at the Spa

Prioritizing routine self-care is a must for both women and men living with lupus. Enjoying a day at the spa – or creating a spa-like experience at home – can feed the body and soul!   Introduction to Lupus and Self-care: A Day at the Spa Building the Perfect Spa Day In Conclusion Introduction to…

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Fatty Acids: Omega-3s in the Treatment of Lupus

Contents What exactly are omega-3’s? What are the health benefits of omega-3’s? Sources of Omega-3 Krill Oil in the Treatment of Lupus In conclusion Lately, there have been a growing number of research studies, which highlight the possible role of certain fatty acids in slowing that kind of overactive immune responses that are seen in…

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Lupus, the Heart and Cardiovascular System

Approximately half of individuals with lupus experience hypertension, making cardiovascular disease the number one cause of death. Explore the risks of cardiovascular disease and what can be done to treat these conditions and protect the heart. . Contents The Heart and its Role as Part of the Cardiovascular System Conditions of the Heart and Cardiovascular…

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Lupus and the Pancreas

Though autoimmune pancreatitis (AIP) is relatively rare, lupus can target the pancreas with an inflammatory response, and of course diabetes is a concern for many – whether it is directly attributed to SLE or not.  Here are some things to consider regarding your lupus and this surprisingly complex organ! Contents What is the Pancreas? Pancreatitis:…

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Lupus and the Risk of Stroke

It is estimated that those with SLE have 8 times the risk for stroke compared to the general public.  The following describes what these risks entail and how you can reduce them as much as possible! Introduction What is stroke? What are the risk factors for stroke in individuals with SLE? How does stroke affect…

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Pain, Pain, Go Away – The Chronic Pain of Lupus

With lupus, pain can hit any part of the body and at any time, and chronic pain can make day-to-day life difficult.  So, what can you do?  Read on to learn more about the many kinds of pain associated with lupus, how they are diagnosed and what can be done to treat them. . Why…

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Lupus and the Liver

Those with lupus / SLE  have a 25-50% chance of developing abnormal liver values in their lifetime.  Read on to find out more about the liver, how it can be affected by lupus and what you can do to take care of this vital organ!   Introduction Function of the Liver Conditions of the Liver,…

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Lupus and the Lungs

According to Johns Hopkins, approximately half of those with SLE will experience some form of lung involvement.  Here is a quick overview of some of the most significant conditions and treatments to consider. Introduction Conditions of the Lungs Pleuritis Acute Lupus Pneumonitis (ALP) Chronic Diffuse Interstitial Lung Disease Subacute Interstitial Lung Disease Pulmonary Emboli Antiphospholipid…

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The Doctor Diaries: What Physicians Wish Patients Knew

Joan Jarrett, M.D., polled dozens of doctors to find out what they would tell you, if only they could.  Here are the top twelve.   01. WE ARE WORKING ON YOUR CASE, EVEN IF IT LOOKS LIKE WE HAVE DISAPPEARED. Physicians often forget how scary being in the hospital can be. Rest assured that when…

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The 4th of July and Being a Dad with Lupus!

Here are some thoughts from a dad as we begin the summer vacation season and the 4th of July holiday … but these are important for any day of the year … because you are a dad 365 days a year! Introduction Fatherhood and Lupus Society’s Expectations In Conclusion Introduction I am a dad with…

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Lupus Awareness Month 2018

Kaleidoscope Fighting Lupus May is National Lupus Awareness Month – a time for Kaleidoscope Fighting Lupus and partnering organizations across the country to highlight the disease. May 10th is World Lupus Day bringing global awareness to this disease.  Lupus is a global health problem affecting millions of people of all nationalities, races, ethnicities, genders and…

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mouth sores

Mouth Sores and Lupus

Contents: Introduction How is it diagnosed? What may be causing my mouth sores if it is not lupus? How are mouth sores treated? What can be done to help alleviate or prevent them How can my dentist help? In conclusion Introduction Much of the information about systemic lupus erythematosus (SLE) focuses on how the disease affects…

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H.P. ACTHAR® GEL and Lupus

 WHAT IS LUPUS? Lupus is widespread and chronic autoimmune disease that, for some reason, causes the immune system to attack the body’s own tissue and organs, including the joints, kidneys, heart, lungs, brain, blood or skin.  Lupus is one of America’s least recognized major diseases, despite the fact that hundreds of thousands of Americans suffer…

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Lupus Nephritis

Lupus Nephritis

Contents: Introduction What are the kidneys and what do they do? What are the symptoms of lupus nephritis and how do I recognize it? How does lupus nephritis get diagnosed? Once diagnosed, how is lupus nephritis treated? Can Lifestyle Changes Help Those With Lupus Nephritis? How Research is Providing Hope In Summary, by Dr. Donald…

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Lupus Defintition

Doctors Who Treat Lupus

Contents: Introduction Types of Doctors That Treat Lupus:      Dermatologist      Cardiologist      Clinical Immunologist      Endocrinologist      Family Doctor      Gastroenterologist      Hematologist      Nephrologist      Neurologist      Perinatologist      Psychologist      Pulmonologist      Rheumatologist      Social Worker In Conclusion…

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Lupus and Grief

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or another chronic illness): “Overwhelmingly keen mental anguish, suffering and distress over the absolute topsy turvy and unexpected negative turn of events in his or…

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Lupus and Stem Cell Therapy

INTRODUCTION Recently, there has been an influx of research about stem cell therapies being used as a potential treatment for SLE and other lupus overlap diseases.  At Kaleidoscope Fighting Lupus, we have received several inquiries regarding this new therapy, and deemed it responsible to clarify (due to its experimental and somewhat controversial nature) what stem…

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Plaquenil

Plaquenil: What You Need to Know

Contents: What is Plaquenil? Other than Plaquenil, what are the other antimalarial drugs? Why are antimalarial drugs used to treat lupus? How do antimalarial drugs work to control lupus symptoms? What should I keep in mind when taking antimalarial drugs?  How to use Plaquenil What are the possible side effects of antimalarial drugs? Can I…

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Your ANA: Facts and Fiction

Two Scenarios SCENARIO ONE: Sarah’s heart is racing as she sits in her doctor’s office awaiting her test results.   The visible facial rash and joint pain that appeared after her baby was born have been extremely challenging to live with.  The answers to what seem like months of waiting, months of referrals, and months of…

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Low-Dose Naltrexone and Lupus

The Use of Low-Dose Naltrexone for Lupus and Other Overlap Conditions WHAT IS LDN? Low-dose naltrexone or LDN is a medication that is getting more attention because of preliminary research showing promise for use with diseases like multiple sclerosis, some cancers, HIV/AIDS and other chronic pain conditions.  Over the last several months, we, at Kaleidoscope…

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There’s An App for THAT! Living With Lupus in the Age of Technology

Note:  For the latest in smart phone apps specific to lupus, check out our updated blog by clicking here Lupus and Mobile Tech – Smartphone Apps and Managing Your Health Contents: EPA’s SunWise UV Index App MANGO Health App Lupus Tracker Pro Image InBox The Lupus Companion Other Helpful Apps     In the age…

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