Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Lupus and Infertility

Both women and men with lupus dreaming of starting a family may struggle with infertility. However, with today’s medical technologies, infertility can be treatable and even preventable! Introduction to Lupus and Infertility Who is at greatest risk, and what are the risk factors for infertility in lupus? How can emotional health influence fertility? How is…

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The Male Faces of Lupus

As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29,  is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…

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Symptoms of Lupus in Men

  Symptoms of Lupus in Men Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE…

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Lupus and the Military – A New Kind of Mission

As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…

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Diagnosing Lupus and Lupus Tests

Do you think you may have lupus?  Understanding the complex, multi-step process of getting a lupus diagnosis is one of the most common questions we get and there is no easy answer. The goal of this blog is to describe the most common aspects of the diagnosis process and provide the tools needed to go back…

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Five Facts About Lupus

  Lupus may present itself in different ways and virtually no two people will have the exact same symptoms nor the exact same treatment plans. It’s important for all of us – whether or not we have lupus – to get beyond our first impression of this chronic illness and get to know it on…

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Lupus – A Kaleidoscope Disease

Our use of the term “kaleidoscope” is purposeful in characterizing the many diverse and shifting medical facets and symptoms of lupus as an illness as well as describing the variety and beauty of those living with the disease. Introduction Why is lupus a kaleidoscope Disease Scleroderma Rheumatoid Arthritis Mixed Connective Tissue Disease Raynaud’s Phenomenon Sjogren’s…

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Lupus and The Human Touch: Massage Therapy for Symptom Management

As someone with lupus, you may feel like you’ve exhausted all of your options for symptom relief. You may have grown weary of trying one prescription after another and while you may experience some benefits, it may not be enough. You may still find yourself struggling with the aches, pains and stiffness that comes with…

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Lupus and Acupuncture

Estimated to be worth over $210 billion by 2026, the complementary and alternative medicines’ market has taken off like wildfire as many seek a wide variety of ways to fight the ravages of illness and stress. Many swear by the curative powers of practices such as massage therapy and acupuncture as ways to assist in…

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Lupus and Art Therapy

I was diagnosed with lupus in 2001. At the time, I was in my mid-twenties and scared to death of being diagnosed with a lifelong illness. I remember feeling so powerless, alone and frightened of what it would mean for the life ahead of me. I did not know it then, but realize now, that…

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Lupus and Emotional Health: The Impact of Mental Health Therapy on Overall Well-Being

It is normal to feel overwhelmed at times. You may feel stressed, anxious, depressed or even angry. Emotions are a part of life, yet at times they are overwhelming.  When you have lupus, a flare, especially when you’ve been feeling pretty decent, can throw you for a loop.  A new diagnosis of lupus comes with…

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Living with Lupus: Managing Other People’s Feelings When You Are Ill

Sometimes the hardest part of telling others that you have lupus is managing how they deal with your news. Read more about the complex emotions that can arise from a lupus diagnosis. Introduction Fear of the Unknown Vulnerability Trust Jealousy Guilt and Shame In Conclusion   Introduction Having a chronic disease like lupus can be difficult, to say the…

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Increasing Lupus Awareness Through Local and National Advocacy

Advocating for systemic lupus erythematosus (SLE) when you are dealing with its symptoms can seem daunting. There are ways you can advocate, however, that still can garner the attention this chronic illness needs while taking care of yourself in the process. Introduction Preparing Yourself for Advocacy The Many Shapes of Advocacy In Conclusion Introduction When…

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Exercise and Lupus – At Home or at the Gym?

  You want to be successful when starting any exercise regime, and you probably want it to be convenient, comfortable, affordable and motivating especially when you are already challenged with lupus. Avoiding additional stress will help you to stay engaged and in a regular routine. You may be asking yourself, however, where’s the best place…

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Yoga and Lupus – Presence of Mind, Presence of Being

I used to think that yoga was a one-size-fits-all program, but that it would never quite fit me. Suffering from back and knee pain, a traditional yoga practice seemed out of reach to me and would only exacerbate the discomfort I already experienced – when it was supposed to do the exact opposite. Now, I…

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Stretching Your Way to Fitness While Living with Lupus

Beginning any exercise routine may seem like an insurmountable feat if you have lupus. Having the energy to throw together dinner or do some laundry can be daunting and can exacerbate fatigue, joint stiffness and pain – so exercise may be the furthest thing from your mind these days. Easing into a fitness routine such…

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Easing into a Fitness Routine When You Have Lupus

Thinking of starting an exercise routine can seem more daunting than the workout itself. Are you contemplating YouTube videos or joining the local gym?  Trying to decide between Zumba or Pilates? Stretch pants or yoga pants?  Toss in the fact that you have lupus and do you wonder if you’ll even have the energy to…

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Caring for the Caregiver: What You Need to Know

Dick met Jane. They got married. Dick and Jane were happy and healthy.  Dick and Jane took care of each other. Dick and Jane went out often together and had fun. Dick and Jane planned a wonderful and bright future together.  Then … Jane got sick.  Dick and Jane found out that her illness has…

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Lupus and Intimacy

Introduction Defining Intimacy The Physical Barriers to Intimacy The Emotional Barriers to Intimacy Ways to Improve Intimacy In Conclusion Introduction Living with lupus can affect you physically and emotionally.  It can also affect the way you view your self-image, and how you feel (good or bad) about sex and intimacy.  Fatigue, joint pain, depression and certain lupus medications may all interfere with…

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Expressing Gratitude When Living with Lupus

Introduction The Chemistry of Gratitude Gratitude and Overall Well-Being 5 Ways to Experience and Express More Gratitude In Conclusion   “An attitude of gratitude brings great things. – Yogi Bhajan” Introduction How many of us take gratitude for granted? I’ll be the first to admit that I do. I often forget that being grateful extends…

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Cutaneous Lupus

Contents: What is lupus? What are the four types of lupus? What are the different types of cutaneous lupus? Who gets cutaneous lupus and how does it relate to systemic lupus? Is cutaneous lupus contagious? How is it diagnosed and treated? Tips and Advice In Conclusion What is lupus? Lupus is a widespread and chronic…

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