Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Mixed Connective Tissue Disease (MCTD)

Mixed Connective Tissue Disease is one of the most complicated conditions to diagnose and treat, especially as it often mimics the symptoms of lupus. This article sheds some light on this misunderstood condition. Introduction Mixed Connective Tissue Disease (MCTD) Is MCTD an overlap disease of lupus? What causes MCTD? Antibody Profile of MCTD Symptoms of…

Read More

Lupus and Employment –Working Smarter and Not Harder to Create Success

  Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life.   Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t…

Read More

The Dynamics of Relationships – Lupus, Family and Support Systems

  Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication…

Read More

The Male Faces of Lupus

As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29,  is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…

Read More

Symptoms of Lupus in Men

  Symptoms of Lupus in Men Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE…

Read More

Lupus and the Military – A New Kind of Mission

As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…

Read More

Diagnosing Lupus and Lupus Tests

  Do you think you may have lupus?  Understanding the process of getting a lupus diagnosis is one of the most common questions we get. The goal of this blog is to give a clear understanding of the diagnosis process and provide the tools needed to go back to your healthcare practitioner armed with the information…

Read More

Lupus Flares: Recognizing one, triggers, and prevention

  Lupus flares are the often unpredictable and debilitating bouts of symptoms that afflict many living with lupus.  For some they may be rare events, but for others, they are an ever-present source of worry.  This is an overview of lupus flares and suggestions for how to reduce their frequency and severity. Introduction What is…

Read More

Five Facts About Lupus

  Lupus may present itself in different ways and virtually no two people will have the exact same symptoms nor the exact same treatment plans. It’s important for all of us – whether or not we have lupus – to get beyond our first impression of this chronic illness and get to know it on…

Read More

Lupus – A Kaleidoscope Disease

  Our use of the term “kaleidoscope” is purposeful in characterizing the many diverse and shifting medical facets and symptoms of lupus as an illness as well as describing the variety and beauty of those living with the disease. Introduction Why is lupus a kaleidoscope Disease Scleroderma Rheumatoid Arthritis Mixed Connective Tissue Disease Raynaud’s Phenomenon…

Read More

Lupus and The Human Touch: Massage Therapy for Symptom Management

  As someone with lupus, you may feel like you’ve exhausted all of your options for symptom relief. You may have grown weary of trying one prescription after another and while you may experience some benefits, it may not be enough. You may still find yourself struggling with the aches, pains and stiffness that comes…

Read More

Lupus and Acupuncture: Using Complementary Therapy to Manage Your Symptoms

  Estimated to be worth over $210 billion by 2026, the complementary and alternative medicines’ market has taken off like wildfire as many seek a wide variety of ways to fight the ravages of illness and stress. Many swear by the curative powers of practices such as massage therapy and acupuncture as ways to assist…

Read More

Lupus and Art Therapy

I was diagnosed with lupus in 2001. At the time, I was in my mid-twenties and scared to death of being diagnosed with a lifelong illness. I remember feeling so powerless, alone and frightened of what it would mean for the life ahead of me. I did not know it then, but realize now, that…

Read More

Lupus and Emotional Health: The Impact of Mental Health Therapy on Overall Well-Being

  It is normal to feel overwhelmed at times. You may feel stressed, anxious, depressed or even angry. Emotions are a part of life, yet at times they are overwhelming.  When you have lupus, a flare, especially when you’ve been feeling pretty decent, can throw you for a loop.  A new diagnosis of lupus comes…

Read More

Managing Other People’s Feelings When You Are Ill

Having a chronic disease like lupus can be difficult, to say the least.  Coming to grips with the reality that lupus is now a thread in the tapestry of your life is scary and extremely overwhelming.  Once you are told you have lupus, you then have to share the news with the world (or at…

Read More

Increasing Lupus Awareness Through Local and National Advocacy

Advocating for systemic lupus erythematosus (SLE) when you are dealing with its symptoms can seem daunting. There are ways you can advocate, however, that still can garner the attention this chronic illness needs while taking care of yourself in the process. Introduction Preparing Yourself for Advocacy The Many Shapes of Advocacy In Conclusion Introduction When…

Read More

Exercise and Lupus – At Home or at the Gym?

  You want to be successful when starting any exercise regime, and you probably want it to be convenient, comfortable, affordable and motivating especially when you are already challenged with lupus. Avoiding additional stress will help you to stay engaged and in a regular routine. You may be asking yourself, however, where’s the best place…

Read More

Yoga and Lupus – Presence of Mind, Presence of Being

I used to think that yoga was a one-size-fits-all program, but that it would never quite fit me. Suffering from back and knee pain, a traditional yoga practice seemed out of reach to me and would only exacerbate the discomfort I already experienced – when it was supposed to do the exact opposite. Now, I…

Read More

Easing into Exercise with Lupus – Stretching Your Way Gently to Fitness

Beginning any exercise routine may seem like an insurmountable feat if you have lupus. Having the energy to throw together dinner or do some laundry can be daunting and can exacerbate fatigue, joint stiffness and pain – so exercise may be the furthest thing from your mind these days. Easing into a fitness routine such…

Read More

Easing into a Fitness Routine When You Have Lupus

  Thinking of starting an exercise routine can seem more daunting than the workout itself. Are you contemplating YouTube videos or joining the local gym?  Trying to decide between Zumba or Pilates? Stretch pants or yoga pants?  Toss in the fact that you have lupus and do you wonder if you’ll even have the energy…

Read More

Caring for the Caregiver: What You Need to Know

  Dick met Jane. They got married. Dick and Jane were happy and healthy.  Dick and Jane took care of each other. Dick and Jane went out often together and had fun. Dick and Jane planned a wonderful and bright future together.  Then … Jane got sick.  Dick and Jane found out that her illness…

Read More