Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Chronic Fatigue Syndrome and Lupus

While Chronic Fatigue Syndrome is not an overlap disease of lupus, current research is revealing more and more similarities between both conditions and what may cause them. Introduction What causes CFS? What are the symptoms of CFS? How is CFS diagnosed and treated? In Conclusion Introduction In 2015, the Institute of Medicine (IOM) published a…

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Lupus and Art Therapy

I was diagnosed with lupus in 2001. At the time, I was in my mid-twenties and scared to death of being diagnosed with a lifelong illness. I remember feeling so powerless, alone and frightened of what it would mean for the life ahead of me. I did not know it then, but realize now, that…

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Lupus and Emotional Health: The Impact of Mental Health Therapy on Overall Well-Being

  It is normal to feel overwhelmed at times. You may feel stressed, anxious, depressed or even angry. Emotions are a part of life, yet at times they are overwhelming.  When you have lupus, a flare, especially when you’ve been feeling pretty decent, can throw you for a loop.  A new diagnosis of lupus comes…

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Managing Other People’s Feelings When You Are Ill

Having a chronic disease like lupus can be difficult, to say the least.  Coming to grips with the reality that lupus is now a thread in the tapestry of your life is scary and extremely overwhelming.  Once you are told you have lupus, you then have to share the news with the world (or at…

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Increasing Lupus Awareness Through Local and National Advocacy

  Advocating for lupus apart from talking with friends, family and your healthcare team may seem like a near impossible task. You only have so many spoons a day and often your good days are spent recovering from yesterday in preparation for tomorrow. It may feel safer to leave the advocating to someone who actually…

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Self-Advocacy and Lupus: Charting the Course of Your Healthcare Destiny

  You’ve been there before. You recently received medical care – and now you’ve received the bill. With each line item, you become more and more confused and may start to question the level of care you received in proportion to the cost in the first place. You may also notice the lab you always…

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Lupus Advocates and Allies – Using Your Voice to Make a Difference

  Are you an advocate or an ally? If you or someone you know has lupus, you have the amazing opportunity to create positive change. Whether you have first-hand experience with lupus and lupus overlap diseases or you are driven to fight for the people who cope with lupus, you are in a unique position…

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Exercise and Lupus – At Home or at the Gym?

  You want to be successful when starting any exercise regime, and you probably want it to be convenient, comfortable, affordable and motivating especially when you are already challenged with lupus. Avoiding additional stress will help you to stay engaged and in a regular routine. You may be asking yourself, however, where’s the best place…

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Yoga and Lupus – Presence of Mind, Presence of Being

I used to think that yoga was a one-size-fits-all program, but that it would never quite fit me. Suffering from back and knee pain, a traditional yoga practice seemed out of reach to me and would only exacerbate the discomfort I already experienced – when it was supposed to do the exact opposite. Now, I…

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Easing into Exercise with Lupus – Stretching Your Way Gently to Fitness

Beginning any exercise routine may seem like an insurmountable feat if you have lupus. Having the energy to throw together dinner or do some laundry can be daunting and can exacerbate fatigue, joint stiffness and pain – so exercise may be the furthest thing from your mind these days. Easing into a fitness routine such…

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Easing into a Fitness Routine When You Have Lupus

  Thinking of starting an exercise routine can seem more daunting than the workout itself. Are you contemplating YouTube videos or joining the local gym?  Trying to decide between Zumba or Pilates? Stretch pants or yoga pants?  Toss in the fact that you have lupus and do you wonder if you’ll even have the energy…

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Caring for the Caregiver: What You Need to Know

  Dick met Jane. They got married. Dick and Jane were happy and healthy.  Dick and Jane took care of each other. Dick and Jane went out often together and had fun. Dick and Jane planned a wonderful and bright future together.  Then … Jane got sick.  Dick and Jane found out that her illness…

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Lupus and the Flu Shot: What You Need to Know

It is the beginning of the 2019-20 flu season, and here are some important things to think about concerning the flu and flu vaccinations. If you have lupus, you should strongly consider speaking to your doctor about getting a seasonal flu vaccine.  In this blog, we  answer many questions regarding this particular type of vaccination and…

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Lupus and Menopause

  We are fortunate to live in a day and age when many of us can speak openly about sexual health and well-being, and it’s no longer considered taboo to discuss menopause.  Once whispered under the breath – and never around men – “the change of life” was something you only discussed with your bestie…

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Lupus and Intimacy

Introduction Defining Intimacy The Physical Barriers to Intimacy The Emotional Barriers to Intimacy Ways to Improve Intimacy In Conclusion Introduction Living with lupus can affect you physically and emotionally.  It can also affect the way you view your self-image, and how you feel (good or bad) about sex and intimacy.  Fatigue, joint pain, depression and certain lupus medications may all interfere with…

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Giving Thanks: Expressing Gratitude When Living with Lupus

  Introduction The Chemistry of Gratitude Gratitude and Overall Well-Being 5 Ways to Experience and Express More Gratitude In Conclusion   “An attitude of gratitude brings great things. – Yogi Bhajan” Introduction How many of us take gratitude for granted? I’ll be the first to admit that I do. I often forget that being grateful…

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Cutaneous Lupus

Contents: What is lupus? What are the four types of lupus? What are the different types of cutaneous lupus? Who gets cutaneous lupus and how does it relate to systemic lupus? Is cutaneous lupus contagious? How is it diagnosed and treated? Tips and Advice In Conclusion What is lupus? Lupus is a widespread and chronic…

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Vitamin D Deficiency and Lupus

Contents: Introduction What is vitamin D and how does it affect the body? What do the studies show about vitamin D deficiency and lupus show? What are the symptoms for vitamin D deficiency? How is a vitamin D deficiency diagnosed? What is considered a good level for vitamin D? Are certain people more likely to…

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Fatty Acids: Omega-3s in the Treatment of Lupus

  Contents What exactly are omega-3’s? What are the health benefits of omega-3’s? Sources of Omega-3 Krill Oil in the Treatment of Lupus In conclusion Lately, there have been a growing number of research studies, which highlight the possible role of certain fatty acids in slowing that kind of overactive immune responses that are seen…

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Lupus and Your Body: Your Precious Heart and Cardiovascular System

  Contents The Heart and its Role as Part of the Cardiovascular System Conditions of the Heart and Cardiovascular System Staying Healthy In Conclusion   The average heart beats approximately 100,000 times a day. For an 80-year old, that adds up to an astonishing 280,000,000 beats over the years! It stands to reason how resilient…

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Your Pancreas – Don’t Take This Complex Organ For Granted!

  Contents What is the Pancreas? Pancreatitis Preventing Pancreatitis Diabetes Diagnosing Diabetes Treating Diabetes Diabetes Prevention In Conclusion As of 2015, 9.4% of the American population had diabetes – that’s 30.3 million Americans. Unfortunately, that number is not a surprise considering we are living in a time when everything – including us – seems to…

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