Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Lupus and Inflammation

Similar to “friendly fire,” with lupus, the body is constantly attacked by its own immune system, resulting in a series of reactionary, inflammatory responses. Understanding what can trigger these responses may help individuals with SLEplay a greater role in the management of their own health. Introduction What is inflammation, and how does it relate to…

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Lupus and the Flu Shot: What You Need to Know

It is the beginning of the 2019-20 flu season, and here are some important things to think about concerning the flu and flu vaccinations. If you have lupus, you should strongly consider speaking to your doctor about getting a seasonal flu vaccine.  In this blog, we will answer many questions regarding this particular type of vaccination….

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Lupus and Low Disease Activity

While living lupus-free is the ideal goal, what is the optimal goal for an individual living with lupus in the here-and-now? Achieving Lupus Low Disease Activity State (LLDAS) is key to feeling your best with a minimum of symptoms and medications in order to maintain a good quality of life. What does LLDAS look like,…

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Lupus and Mobile Tech – Smartphone Apps and Managing Your Health

According to recent estimates, there are over 300,000 mobile health apps available to the consumer.  What should you consider before downloading an app, and which ones could help you the most with tracking and managing your healthcare? Let’s take a look! Introduction The Latest Mobile Health Apps for Individuals with Lupus The Pros and Cons…

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Lupus and Cannabis: A New Conversation

At Kaleidoscope Fighting Lupus, we rigorously stay up-to-date on the latest lupus treatments and therapy strategies.  In this article, we explore the uses of cannabis and its derivatives.  The following is a brief overview that may begin to answer some questions that you may have. Introduction How can cannabis and its derivatives effectively treat lupus…

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Dealing With a Lupus Depression: How Do You Cope?

Researchers of a 2017 meta-study published in the journal BMC Psychiatry found that approximately 25% 0f individuals with lupus experience depression. You may be one of those individuals who suffer from this often debilitating condition, especially when trying to come to terms with having lupus. Why does this happen and what can you do to…

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Lupus Fatigue: Causes, Treatment and Managing Expectations

  It is easy to oversimplify fatigue as merely the feeling of being really tired, especially if you don’t have chronic illness or autoimmune disease.  I may say that I feel fatigued after a hard workout at the gym after my muscles have been stretched to their limits and beyond, but I can recover from…

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Lupus and the Importance of Sleep

Hitting the hay, getting forty winks, waiting for a visit from Mr. Sandman – however you may coyly try to catch up or sneak up on sleep, it may still evade you if you are an individual with lupus. Why is the ability to fall into a deep slumber so difficult when you feel so…

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Nutrition and Lupus

A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…

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Lupus and the Biology of Digestion

More than 50% of those with lupus experience some kind of digestive system disorder.  Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…

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Lupus and Maintaining Healthy Weight

As if you don’t feel bad enough between the fatigue, lupus brain fog and chronic pain, you may also have weight issues to deal with. Whether you have the challenge of keeping the weight on or off, here are some important things to consider! Introduction What causes weight fluctuations in lupus? How can you manage…

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Summertime Blues: Summer and Lupus

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you have lupus or another lupus overlap disease, you may relate MORE with lyrics like this: “Summertime, and the livin’ is weezy… Joints are hurtin’ and…

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Lupus Hair Loss and Alopecia Explained

 Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…

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The Lupus Butterfly Rash: Information You Need to Know

At least half of individuals with lupus have the malar – or butterfly – rash. Read on to learn more about this common, characteristic condition for those living with lupus. Introduction Causes of the Malar Rash Diagnosing Malar Rash and Lupus Treating and Preventing Malar rash Mental Health and Malar Rash Dr. Nisha Desai:  Lupus…

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Lupus and Photosensitivity: When the Sun is Your Enemy

If you have lupus, you might be photosensitive – meaning you have an unusually strong reaction to sunlight.  In fact, about two-thirds of the people with lupus are UV light-sensitive.  Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light. Are you photosensitive?…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!   Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However, the stress…

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Lupus and Employment: Knowing Your Options

Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life. Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t an Option…

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The Dynamics of Relationships – Lupus, Family and Support Systems

  Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication…

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The Male Faces of Lupus

As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29,  is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…

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Symptoms of Lupus in Men

  Symptoms of Lupus in Men Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE…

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Lupus and the Military – A New Kind of Mission

As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…

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