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Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.

Breaking Down Your Urinalysis

Kidney disease, specifically lupus nephritis, is one of the most common and serious conditions for those diagnosed with lupus.  Timely urinalysis testing is a relatively simple and effective way to help with an early diagnosis that may prevent damage later on.  Here is an overview of what you should know and expect from a urinalysis….

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Lupus and Photosensitivity: When the Sun is Your Enemy

If you have lupus, you might be photosensitive – meaning you have an unusually strong reaction to sunlight.  In fact, about two-thirds of the people with lupus are UV light-sensitive.  Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light. Are you photosensitive?…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!     Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency   This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However,…

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Lupus and Employment –Working Smarter and Not Harder to Create Success

  Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life.   Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t…

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The Dynamics of Relationships – Lupus, Family and Support Systems

  Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication…

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The Male Faces of Lupus

As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29,  is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…

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Symptoms of Lupus in Men

  Symptoms of Lupus in Men Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE…

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Lupus and the Military – A New Kind of Mission

As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…

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Diagnosing Lupus and Lupus Tests

  Do you think you may have lupus?  Understanding the process of getting a lupus diagnosis is one of the most common questions we get. The goal of this blog is to give a clear understanding of the diagnosis process and provide the tools needed to go back to your healthcare practitioner armed with the information…

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Lupus Flares: Recognizing one, triggers, and prevention

  Lupus flares are the often unpredictable and debilitating bouts of symptoms that afflict many living with lupus.  For some they may be rare events, but for others, they are an ever-present source of worry.  This is an overview of lupus flares and suggestions for how to reduce their frequency and severity. Introduction What is…

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Five Facts About Lupus

  Lupus may present itself in different ways and virtually no two people will have the exact same symptoms nor the exact same treatment plans. It’s important for all of us – whether or not we have lupus – to get beyond our first impression of this chronic illness and get to know it on…

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Lupus – A Kaleidoscope Disease

  Our use of the term “kaleidoscope” is purposeful in characterizing the many diverse and shifting medical facets and symptoms of lupus as an illness as well as describing the variety and beauty of those living with the disease. Introduction Why is lupus a kaleidoscope Disease Scleroderma Rheumatoid Arthritis Mixed Connective Tissue Disease Raynaud’s Phenomenon…

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Lupus and The Human Touch: Massage Therapy for Symptom Management

  As someone with lupus, you may feel like you’ve exhausted all of your options for symptom relief. You may have grown weary of trying one prescription after another and while you may experience some benefits, it may not be enough. You may still find yourself struggling with the aches, pains and stiffness that comes…

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Lupus and Acupuncture: Using Complementary Therapy to Manage Your Symptoms

  Estimated to be worth over $210 billion by 2026, the complementary and alternative medicines’ market has taken off like wildfire as many seek a wide variety of ways to fight the ravages of illness and stress. Many swear by the curative powers of practices such as massage therapy and acupuncture as ways to assist…

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Lupus and Art Therapy

I was diagnosed with lupus in 2001. At the time, I was in my mid-twenties and scared to death of being diagnosed with a lifelong illness. I remember feeling so powerless, alone and frightened of what it would mean for the life ahead of me. I did not know it then, but realize now, that…

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Lupus and Emotional Health: The Impact of Mental Health Therapy on Overall Well-Being

  It is normal to feel overwhelmed at times. You may feel stressed, anxious, depressed or even angry. Emotions are a part of life, yet at times they are overwhelming.  When you have lupus, a flare, especially when you’ve been feeling pretty decent, can throw you for a loop.  A new diagnosis of lupus comes…

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Managing Other People’s Feelings When You Are Ill

Having a chronic disease like lupus can be difficult, to say the least.  Coming to grips with the reality that lupus is now a thread in the tapestry of your life is scary and extremely overwhelming.  Once you are told you have lupus, you then have to share the news with the world (or at…

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Increasing Lupus Awareness Through Local and National Advocacy

  Advocating for lupus apart from talking with friends, family and your healthcare team may seem like a near impossible task. You only have so many spoons a day and often your good days are spent recovering from yesterday in preparation for tomorrow. It may feel safer to leave the advocating to someone who actually…

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Self-Advocacy and Lupus: Charting the Course of Your Healthcare Destiny

  You’ve been there before. You recently received medical care – and now you’ve received the bill. With each line item, you become more and more confused and may start to question the level of care you received in proportion to the cost in the first place. You may also notice the lab you always…

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Lupus Advocates and Allies – Using Your Voice to Make a Difference

  Are you an advocate or an ally? If you or someone you know has lupus, you have the amazing opportunity to create positive change. Whether you have first-hand experience with lupus and lupus overlap diseases or you are driven to fight for the people who cope with lupus, you are in a unique position…

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Exercise and Lupus – At Home or at the Gym?

  You want to be successful when starting any exercise regime, and you probably want it to be convenient, comfortable, affordable and motivating especially when you are already challenged with lupus. Avoiding additional stress will help you to stay engaged and in a regular routine. You may be asking yourself, however, where’s the best place…

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