Kaleidoscope Blog

We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the                               never-ending quest for a cure.

Lupus and Cancer

The relationship between lupus and cancer is very complex.  There is a higher risk for some cancers, a lower risk for others, and even some lupus medications can increase the risks.  Read on to take a closer look at the links between living with lupus and the risk for cancer, and find out what you…

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Dealing with Dialysis While Living with Lupus

Approximately 10% to 25% of those with lupus nephritis may develop end-stage renal disease (ESRD) and require dialysis. If you have SLE and need dialysis, read on to find out what it means and how it could affect your life. Introduction to Lupus and Kidney Dialysis What is dialysis? What does dialysis mean for someone…

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Transplants and Lupus

The World Health Organization estimates that more than 69,000 kidney transplants are performed worldwide. Whether the transplant is from a close friend, relative, or even total stranger, receiving a new kidney can mean getting a new lease on life for those with lupus nephritis and kidney failure. Introduction to Lupus Nephritis and Kidney Transplants How…

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Spoon Theory

Finding the right words to put living with lupus in perspective can be difficult.   Spoon Theory to the rescue! What is Spoon Theory? Who is a Spoonie? Life as a Spoonie In Conclusion What is Spoon Theory? In 2003, Christine Miserandino created The Spoon Theory to explain what life is like for someone living…

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Lupus Nephritis

Lupus nephritis (LN) is a leading cause of death in SLE and can affect from 40% to 50% of those with lupus. Yet, newly approved drug therapies promise to change the future LN.  Read on to learn more about this dangerous condition and how it can be treated. Introduction: What is lupus nephritis? Who is…

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Lupus and Dry, Brittle Hair – “Lupus Hair”

Lupus, and all that comes with it, can have a serious effect on your hair.  Dry, brittle hair that easily breaks off is one aspect that can really be alarming.  However, there are simple things you can do to lessen the damage.  Continue reading to find out why ”lupus hair” happens, and what can you…

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Lupus and the Healing Power of Belief

You may hold the key to feeling better simply by believing.  Whether through spiritual faith or confidence in medicine, belief can have a powerful healing effect. Introduction to Lupus and the Power of Belief The Biology and Psychology of Belief How can I improve my attitude and my lupus symptoms? In Conclusion Introduction to Lupus…

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Lupus and Isolation: A Guide to Surviving the Holidays During a Global Pandemic

Few can argue that 2020 has been a year unlike any other. Feelings of isolation may be amplified now that it’s the holiday season, and if you have lupus, these feelings may be stronger than ever. Introduction Reframing Your Thinking 10 Self-Care Habits To Carry You Through the Holidays Do Onto Others In Conclusion Introduction…

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A Brief Overview of Lupus and the COVID-19 Vaccine

If you have lupus, you must be wondering, is it safe to get a COVID-19 vaccination?  The short answer is yes, but there are some facts you need to know as you consult with your healthcare provider on taking the vaccine.  Read on to find out more! Introduction I have SLE; is the COVID-19 vaccine…

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Lupus and Headaches

It is estimated that over 70% of those with SLE experience some kind of headaches at one time or another throughout the course of the disease. Do you suffer and wonder why your head pounds, making you feel miserable? Read on to find out why. Introduction What are the most common types of headaches for…

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Lupus and the Lymphatic System

The human body has over 600 lymph nodes, and during a lupus flare, every single one of those 600 lymph nodes can react and become swollen.  And if that isn’t enough, lymph nodes are only one part of a vast network of tissues and pathways that make up the lymphatic system – a key player…

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Lupus and Aging: Immunosenescence

Are you over 60 and living with lupus? Even it you are not over 60 yet, it is critical to know how aging affects those of us living with lupus. Read on and find out the facts about lupus, aging and immunosenescence. Introduction Lupus, Aging and Immunosenescence Staying Healthy While Aging with Lupus In Conclusion…

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Lupus and the Menstrual Cycle

“The average woman experiences around 450 periods in her lifetime.”  That means women spend nearly 10 years of their life on their period.  Since 90% of individuals with lupus are women of childbearing age (15-44), it stands to reason that lupus may somehow impact menstruation. If so, what’s the relationship between the two? Introduction What…

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Lupus and Coffee

How many of us NEED a cup of coffee to start our day? Yet, what does it mean to consume coffee while living with lupus? The medical community is beginning to ask that question as well. Read on and find out about coffee and its impact on lupus. Introduction What Makes Coffee, Coffee? Coffee and…

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Lupus and Inflammation

Similar to “friendly fire,” with lupus, the body is constantly attacked by its own immune system, resulting in a series of reactionary, inflammatory responses. Understanding what can trigger these responses may help individuals with SLE play a greater role in the management of their own health. Introduction What is inflammation, and how does it relate…

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Lupus and the Brain

It is estimated that up to 75% of individuals with lupus experience symptoms related to the brain. While it is unclear what directly causes these symptoms, researchers agree that this is an area for continued research.   Introduction Anatomy of the Brain and its Role in the Central Nervous System What are the symptoms of…

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Lupus, Atrial Fibrillation (AFib) and Hydroxychloroquine

Did you know, that approximately half of individuals with lupus develop heart complications, which include rhythm disorders such as atrial fibrillation?  Learning more about the association between atrial fibrillation, lupus and how hydroxychloroquine may prove to be a valuable tool in symptom management. Introduction Symptoms, Causes and Risk Factors for Atrial Fibrillation Diagnosing and Treating…

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Lupus and Tattoos

It is estimated that almost one-third of all people on earth have at least one tattoo … including many living with lupus.  You may have heard conflicting opinions on whether someone with an autoimmune disease should get a tattoo.  To help, here are some of the most important facts and safety concerns to consider before…

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The Impact of Lupus on Oral and Dental Health

From ulcers and dry-mouth, to tooth decay and gum disease, lupus can significantly affect your oral and dental health. Read more about the surprisingly complex relationship between lupus and a healthy smile!   Introduction Signs and Symptoms of Oral and Dental Health Issues in Lupus Causes of Oral and Dental Health Issues in Lupus Oral…

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Lupus and Telemedicine

Today, millions are receiving at least some of their healthcare virtually – through online medical visits. Read about this rapidly evolving practice, and how it can support healthcare for individuals with lupus. Introduction Telemedicine Versus In-Office Visits for Chronic Illness The Pros and Cons of Telemedicine Telemedicine and HIPAA How to Prepare for a Virtual…

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Lupus Remission Guilt

You’re in remission – that is fantastic! So why do you feel so guilty? Keep reading and learn more about lupus remission guilt – how to understand it and do your best to manage the feeling. Introduction What is Lupus Remission Guilt? Shame vs. Guilt in Lupus Remission Managing Lupus Remission Guilt In Conclusion  …

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