Kaleidoscope Blog
We provide a wealth of information about lupus – its symptoms, treatments and the profound ways that it affects people’s lives. Our blogs also highlight the latest medical research behind the never-ending quest for a cure.
Biology of Autoimmunity, Blog, Fatigue, Human Biology, Immune System
Lupus and the Spleen
The spleen plays a vital role in the body’s immune system and overall health, and though serious lupus complicationss are rare, it is important to understand the role of this master blood filter of the body and how it can be affected by SLE! . Introduction: What Does the Spleen Do? How Lupus Affects…
Blog, Coping With Lupus, Featured, Medications
Lupus and Cannabis: A New Conversation
At Kaleidoscope Fighting Lupus, we rigorously stay up-to-date on the latest lupus treatments and therapy strategies. In this article, we explore the uses of cannabis and its derivatives. The following is a brief overview that may begin to answer some questions that you may have. Introduction How can cannabis and its derivatives effectively treat lupus…
Blog, Brain and Nervous System, Depression, Emotional Health, Featured, Invisible Illness, Living with Lupus, Mind/Body Connection, Social Issues, Stress, Symptoms, Systemic Lupus Erythematosus (SLE)
Dealing With a Lupus Depression: How Do You Cope?
Researchers of a 2017 meta-study published in the journal BMC Psychiatry found that approximately 25% 0f individuals with lupus experience depression. You may be one of those individuals who suffer from this often debilitating condition, especially when trying to come to terms with having lupus. Why does this happen and what can you do to…
Blog, Brain and Nervous System, Chronic Fatigue Syndrome, Depression, Fatigue, Sleep Issues
Lupus Fatigue: Causes, Treatment and Managing Expectations
The unrelenting exhaustion of lupus fatigue affects up to 80% of those living with SLE. Read on to learn what the medical community has to say about its causes, symptoms and some of the best ways to cope with this extremely common and sometimes debilitating condition. Introduction What are the causes and symptoms of lupus…
Blog, Featured
Lupus and the Importance of Sleep
Hitting the hay, getting forty winks, waiting for a visit from Mr. Sandman – however you may coyly try to catch up or sneak up on sleep, it may still evade you if you are an individual with lupus. Why is the ability to fall into a deep slumber so difficult when you feel so…
About Lupus, Coping With Lupus, Dietary Supplements, Featured, General Information, Living with Lupus, Nutrition, Systemic Lupus Erythematosus (SLE)
Lupus and Nutrition
A good diet should be a priority for everyone. However, when there are complex lupus symptoms to manage, you have to go above and beyond the basic nutritional guidelines. This isn’t always and easy thing to do. Introduction Basic Dietary Guidelines to Follow When You Have Lupus The Impact of Good Nutrition on Lupus Dietary…
About Lupus, Blog, Featured, General Information, Living with Lupus, Symptoms
Lupus and the Biology of Digestion
More than 50% of those with lupus experience some kind of digestive system disorder. Here is an overview of this complex part of the human body and how it can be affected by lupus, lupus medications and other conditions associated with SLE. Introduction Basics of the Digestive System General Effects of Lupus and Medications Specific…
Blog, Featured
Lupus and Maintaining Healthy Weight
As if you don’t feel bad enough between the fatigue, lupus brain fog and chronic pain, you may also have weight issues to deal with. Whether you have the challenge of keeping the weight on or off, here are some important things to consider! Introduction What causes weight fluctuations in lupus? How can you manage…
About Lupus, Blog, Coping With Lupus, Featured, General Information, Living with Lupus
Lupus and Summer
Summertime … and the livin’ with lupus is… not easy. With the intense sunlight, heat, humidity, wind, pollen and even air pollution, summer can make life miserable for those living with SLE. Summer conditions can trigger flares and possibly even the disease itself. To learn how to best manage this time of year, read on. …
Blog, Cutaneous Lupus, Featured, Hair Loss, Living with Lupus, Symptoms, Systemic Lupus Erythematosus (SLE)
Lupus Hair Loss and Alopecia Explained
Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…
Blog, Featured, General Information, Living with Lupus, Lupus Rash, Photosensitivity, Symptoms
The Lupus Butterfly Rash: Information You Need to Know
At least half of individuals with lupus have the malar – or butterfly – rash. Read on to learn more about this common, characteristic condition for those living with lupus. Introduction Causes of the Malar Rash Diagnosing Malar Rash and Lupus Treating and Preventing Malar rash Mental Health and Malar Rash Dr. Nisha Desai: Lupus…
Blog, Featured, Lupus Rash, Photosensitivity
Lupus and Photosensitivity: When the Sun is Your Enemy
If you have lupus, you might be photosensitive – meaning you have an unusually strong reaction to sunlight. In fact, about two-thirds of the people with lupus are UV light-sensitive. Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light. Are you photosensitive?…
About Lupus, Blog, Coping With Lupus, Featured
Traveling With Lupus
Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide! Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency This time of year, many people enjoy traveling. Exploring different places, cultures, foods and sights can be inspiring and life-changing. However, the stress…
Blog, Featured
Lupus and Employment: Knowing Your Options
Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life. Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t an Option…
5-Minute Read, About Lupus, Blog, Caregivers, Support
The Dynamics of Relationships – Lupus, Family and Support Systems
Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication that…
Blog, Featured
The Male Faces of Lupus
As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29, is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…
About Lupus, Blog, Featured, General Information, Lupus in Men, Symptoms
Symptoms of Lupus in Men
Lupus is not a women’s disease. It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE less prevalent in males? Symptoms of…
Blog, Featured
Lupus and the Military – A New Kind of Mission
As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…
Autoimmune Diseases, Biology of Autoimmunity, Blog, Diagnosis, Featured, General Information, Symptoms, Technology, The Doctors
Diagnosing Lupus and Lupus Tests
Do you think you may have lupus? Understanding the complex, multi-step process of getting a lupus diagnosis is one of the most common questions we get and there is no easy answer. The goal of this blog is to describe the most common aspects of the diagnosis process so that you can approach your healthcare practitioner…
Blog, Featured
Five Facts About Lupus
Lupus may present itself in different ways and virtually no two people will have the exact same symptoms nor the exact same treatment plans. It’s important for all of us – whether or not we have lupus – to get beyond our first impression of this chronic illness and get to know it on…
Blog, Featured
Lupus – A Kaleidoscope Disease
Our use of the term “kaleidoscope” is purposeful in characterizing the many diverse and shifting medical facets and symptoms of lupus as an illness as well as describing the variety and beauty of those living with the disease. Introduction Why is lupus a kaleidoscope Disease Scleroderma Rheumatoid Arthritis Mixed Connective Tissue Disease Raynaud’s Phenomenon Sjogren’s…